Harris
CAAI 2013 Successful Stakeholder Strategies Sustain the Wisconsin Community of Practice on ASD and other DD
May 31, 2013 Wisconsin LEND Anne Bradford Harris, PhD, MPH, Director TA McDonald, MS, 2nd Year Trainee
Originated with CAAI funding • Title V and LEND collaborated to write Combating Autism Act Initiative (CAAI) State ImplementationGrant called “Connections” (awarded 2008-2011) based on state plan • Created Community of Practice on Autism and other Developmental Disabilities (CoP) • Steering Committee formed to guide the work of the CoP, co-chaired by State Title V Medical Director and Parent Leader(s)
CoP Large Group Meetings • “Connections” staff and financial support • 3 large group meetings per year on different topics • Average attendance 80 stakeholders • Built database of 600 attendees over the 3 years – diverse stakeholders • Formed practice groups based on topics of common work identified at first meeting
Community of Practice (CoP) on Autism Spectrum Disorders and other Developmental Disabilities
CoP Meeting Topics • • • •
Mental Health Self-advocate perspectives Post-secondary education Evidence-based practices for ASD in education • Implications of DSM 5 changes (June)
Large Group Meeting Format Always includes: • Family perspective • Best practices, research or policy issue/update • Services and supports discussion • Practice group(s) meet • Steering Committee de-briefs afterwards
CoP Meeting Example CoP Date: 2/10/2010
Attendance by Role 16 14 12 10 8 6 4 2 0
RoleCounts
Total Attendance: 48
Higher Education/Res
Other Health Professional
Parent or Family Member
Physician
7
9
8
5
Self Advocate State program Teacher/Educa or individual professional tor 1
15
3
Strategies for Sustainability 1) Committed Partners as Leaders 2) Community Involvement 3) Use of technology
Committed Partners • State Title V CYSHCN, LEND and family representatives have provided 3 co-chairs for the Steering Committee • State Title V has continued to support part-time coordination through staff position (necessary for continuity) • LEND trainees have continued to participate and have assisted with implementation
Community Involvement Multiple partners have stayed engaged • Parent/family organizations (ASW, ASSEW, Family-to-Family, Family Voices) • B-3, education, DPI, academic, research • Clinicians, health care, mental health • Various agencies Dept of Health Services Have contributed time, speakers, support for venues, food, transportation, distance technology
Use of Technology • Electronic communications – annual survey, database for listserve (over 1000), meeting invitations and registration • Teleconference calls – Steering committee and co-chair meetings • Website repository for resources
Website
Process for Planning Community of Practice Large Group Meetings
Identified Focus Area
Community of Practice Steering Committee
Planning Team
Large Group Event on Focus Area
New Focus Areas Identified
May 31, 2013 Wisconsin LEND Anne Bradford Harris, PhD, MPH, Director TA McDonald, MS, 2nd Year Trainee
Originated with CAAI funding • Title V and LEND collaborated to write Combating Autism Act Initiative (CAAI) State ImplementationGrant called “Connections” (awarded 2008-2011) based on state plan • Created Community of Practice on Autism and other Developmental Disabilities (CoP) • Steering Committee formed to guide the work of the CoP, co-chaired by State Title V Medical Director and Parent Leader(s)
CoP Large Group Meetings • “Connections” staff and financial support • 3 large group meetings per year on different topics • Average attendance 80 stakeholders • Built database of 600 attendees over the 3 years – diverse stakeholders • Formed practice groups based on topics of common work identified at first meeting
Community of Practice (CoP) on Autism Spectrum Disorders and other Developmental Disabilities
CoP Meeting Topics • • • •
Mental Health Self-advocate perspectives Post-secondary education Evidence-based practices for ASD in education • Implications of DSM 5 changes (June)
Large Group Meeting Format Always includes: • Family perspective • Best practices, research or policy issue/update • Services and supports discussion • Practice group(s) meet • Steering Committee de-briefs afterwards
CoP Meeting Example CoP Date: 2/10/2010
Attendance by Role 16 14 12 10 8 6 4 2 0
RoleCounts
Total Attendance: 48
Higher Education/Res
Other Health Professional
Parent or Family Member
Physician
7
9
8
5
Self Advocate State program Teacher/Educa or individual professional tor 1
15
3
Strategies for Sustainability 1) Committed Partners as Leaders 2) Community Involvement 3) Use of technology
Committed Partners • State Title V CYSHCN, LEND and family representatives have provided 3 co-chairs for the Steering Committee • State Title V has continued to support part-time coordination through staff position (necessary for continuity) • LEND trainees have continued to participate and have assisted with implementation
Community Involvement Multiple partners have stayed engaged • Parent/family organizations (ASW, ASSEW, Family-to-Family, Family Voices) • B-3, education, DPI, academic, research • Clinicians, health care, mental health • Various agencies Dept of Health Services Have contributed time, speakers, support for venues, food, transportation, distance technology
Use of Technology • Electronic communications – annual survey, database for listserve (over 1000), meeting invitations and registration • Teleconference calls – Steering committee and co-chair meetings • Website repository for resources
Website
Process for Planning Community of Practice Large Group Meetings
Identified Focus Area
Community of Practice Steering Committee
Planning Team
Large Group Event on Focus Area
New Focus Areas Identified
