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Return to Learn Fall 2014 Webinar Series:

Students (K-12) with Concussion Educational Impacts, Return to School Progression, & Symptom Based Accommodations Brenda Eagan Brown, M.Ed., CBIS

Brenda Eagan Brown, MEd, CBIS BrainSTEPS Program Coordinator The BrainSTEPS Program [email protected]

October 1, 2014

www.brainsteps.net

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The webinars in this concussion series were created to build the capacity of teachers working with students who return to the classroom following concussion. This series does not replace the official PA BrainSTEPS Return to Learn (RTL) Concussion Management Team (CMT) Training. Attendance during this webinar does not denote CMT formation or BrainSTEPS Team Membership. This webinar is for educational purposes only. If your Pennsylvania school district is interested in forming a Concussion Management Team for academic & symptom management, please register your CMT at www.brainsteps.net and online training information will be sent to you.

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If you have questions during the webinar, feel free to email them to me at: [email protected] We are not taking questions during the webinar This webinar is being recorded and will be available online in one month at www.pattan.net and also at www.brainsteps.net

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Safe Kids Worldwide 1 child every 3 minutes sustained a concussion

Concussions in Pennsylvania: Annually, approx. 22,000 children & adolescents sustain concussions.

47% of these concussions were in children ages 12 -15 U.S. Consumer Product Safety Commission’s National Electronic Injury Surveillance System (NEISS) - 2013

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Following a CONCUSSION, there are actual METABOLIC CHEMICAL CHANGES that take place in the brain.

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Brain injury can occur even if there is NO loss of consciousness

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More than 90% of concussions DO NOT involve loss of consciousness.

Memories of events BEFORE & AFTER the concussion are MORE accurate assessments of SEVERITY than loss of consciousness.

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The majority of students should recover within the first 3-4 weeks, many in the first 7-10 days.

A child’s brain is not fully developed until the early to mid-20s. www.brainsteps.net

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Signs and Symptoms of Concussion

Prolonged Concussion: Indicators that student’s concussion will most likely take 1 month or more recover? (UPMC in Pittsburgh, 2012)

1. Fogginess 2. Vomiting 3. Dizziness

CDC, 2014 www.brainsteps.net

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What teachers may observe: • • • • • •

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What teachers may observe: • • • • •

Behavior changes Confusion More emotional than usual More frustrated than normal Unable to cope with stress

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Multi-tasking difficulty More forgetful Slowed thinking & processing Answers questions slowly Word-finding problems Difficulty handling new situations

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What teachers may observe: • Drifting off in class • Difficulty focusing on material, especially more difficult material • Cannot keep focused for a sustained period • Restlessness • Reports of “foggy” feeling

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Physical & Cognitive REST is crucial ACUTELY.

Keep in mind 2 Phases of Recovery:

1. The ACUTE Phase 2. The REHAB Phase

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Too little rest:

= prolonged recovery

School Re-Entry Progression

Too much rest:

= physical deconditioning = social isolation www.brainsteps.net

Return to Learn (RTL) While it is true that an athlete must be 100% symptom-free before Return to Play, they do NOT need to be 100% symptom-free to RTL.

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Students Should Not Push Through Symptoms While Recovering • exacerbates symptoms • prolongs recovery time Majerske, C., et al. 2008

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Need for Rest After Concussion: High levels of cognitive activity

=

Longer recovery from concussion

School Concussion Management

1. Return to Learn 2. Return to PLAY

(Brown et al., , 2014)

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When Students Should Return to Sports

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Acutely- Upon Return to School – Across the Board (length of time needed varies) 1. No note taking 2. Reduce all in class work to 50% 3. No tests, quizzes, standardized tests, or homework 4. Scheduled rest breaks 5. Excuse from all classes/activities that may be overstimulating (light/noise)

Halstead, M.E., McAvoy, K., Devore, C.D., Carl, R., Lee, M., Logan, K. Returning to learning following a concussion. Pediatrics 2013;132(5):948-957.

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A word about Medical Homebound & Homebound Instruction • Keeping a student out of school for too long can be harmful – Socially, Emotionally, Academically

• Something is usually missing: – – – –

6. Excuse from PE, recess, all physical activity

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ONE or the OTHER rule  New Learning  Missed Work

return to school plan academic accommodations staff wasn’t trained to understand concussion fluid, consistent communication between home/school/medical

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For students enrolled in a Career and Technical Center (CTC) Return to Tech vs Return to School

Educational Accommodations

 A Career and Technical Education (CTE) provides unique environmental and academic challenges for the concussed student  Need to Be Separate Decisions

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Academic Accommodation Decisions  Educational accommodation selection is the responsibility of the School Team.  Medical academic accommodation suggestions are only RECOMMENDATIONS that the school team should take into consideration.

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Helping the concussed student remain in school while recovering.

 The school team needs to make the final decision for accommodation implementation based on collected academic data, symptom data, etc.

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Cognitive fatigue and headaches For students who linger, striking a balance between the need for rest and keeping up with academic content is the biggest struggle.

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• 50% of workload is commonly recommended during recovery

• Assignments (homework/classwork) should not be repetitious.

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Cognitive fatigue and headaches Cued Recall is better than Random Retrieval. Alleviate brain fatigue by using:

• Rest Breaks • Removal from Cafeteria ?

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Cognitive fatigue and headaches • Chunking Assignments

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Cognitive Fatigue & headaches • Timeline for work - fatigue

• Water bottle • Extra time

• Don’t just say “Do what you can”

• Timelines to plan

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Cognitive fatigue & headaches

Testing • Acutely tests and quizzes should be delayed (especially standardized tests) • Gradually re-introduce testing, preferably 1 test/quiz per day, as tolerated

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Sensitivity to Light & Noise • Sunglasses, hat • Face student away from bright lights • Remove from over-stimulating classes • Early dismissal • Headphones or ear buds

• Testing in a separate, quiet room

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Social/Emotional

Dizziness

Early on-

• Allow extra time to get to class avoid crowded hallways • Walk with a peer/peer carry books • Elevator key instead of stairs

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Later on–

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Social/Emotional Develop an emotional support plan with the student

Educational Frameworks to Safeguard Persistent/Prolonged/Protracted Concussions

• Identify an adult • Identify a student

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Prolonged Concussion Recovery • PCS

• Students should work to his/her symptom threshold = REST, RECOVER, RETURN to Activity

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Prolonged Concussion Recovery • • • • • •

Physical Therapy Speech Therapy (cognitive rehab) Vestibular Therapy Vision Therapy Medications Counseling

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Academic Supports After Concussion

Informal Supports 100% Formal Supports 10-20%

If a student experiences lasting effects that impact learning (school

evaluation must first take place):

Concussion

504 Plan

IEP

INTENSIVE Very, very few

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Who is Eligible for a 504? Not Special Education – 504 Plan/504 Service Agreement

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o The

physical or mental impairment must impact at least 1 of 13 listed major life activities (Dr. Perry Zirkel, 2010): 1. Seeing

8.

Concentrating

2. Hearing

9.

Sleeping

3. Walking

10. Eating

4. Learning

11. Bowel functions

5. Breathing

12. Bladder functions

6. Reading

13. Digestive functions

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“a person with a disability as any person who has a physical or mental impairment that substantially limits one or more major life activities*, has a record of such impairment, or is regarded as having such impairment.”

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Section 504 of the Rehabilitation Act:

7. Thinking

504 Regulation 34 C.F.R. 104.3(j-l):

There needs to be a plan in place that all teachers implement across the board.

Don’t rely on the student to request accommodations “as needed” www.brainsteps.net

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Journal of School Nursing Article (Legal issues of 504 Plans, IEPS, IHPs after Concussion)

Special Education

April 2015 Publication www.brainsteps.net

(Available online now)

Special Education Classification

Traumatic Brain Injury - (TBI)

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Fear of Faking Symptoms?  Does not occur often  District guidelines can be established

Traumatic Brain Injury was added into the Special Education Law (IDEA) in 1990 as a specific category requiring specialized understanding. www.brainsteps.net

Public Law 101-476 [34 Code of Federal Regulations §300.7(c)(12)]

 Caution advised when limiting school activities

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The BrainSTEPS Program Created by: PA Department of Health in 2007

Pennsylvania’s Statewide

Brain Injury School Consulting Program * BrainSTEPS provides consultation & training for students who sustain all severities of brain injuries acquired anytime after birth

Unique partnership for funding:

PA Department of Health PA Department of Education, Bureau of Special Education via the PaTTAN network

Implemented by:

Brain Injury Association of Pennsylvania

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• 31 BrainSTEPS Teams cover the state of Pennsylvania • 300+ Brain Injury school consultants – Educational professionals – Medical & Rehab professionals – Family members www.brainsteps.net

• • • • • • • • • • • • •

BrainSTEPS team

Communication with family member Communication with school Consultation Consultation with student Activities Records review Consultation: strategies Consultation w/ medical professionals Consultation educational plan Training of educators and support staff Classroom and peer education Information sharing among team Demonstration of interventions Observations/evaluations of student Participation in IEP and 504 meetings

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Students Referred to BrainSTEPS

BrainSTEPS Teams monitor students annually until graduation.

nonTBI

11%

TBI Severities TBI 89%

Moderate & Severe

23% CONCUSSIONS

77%

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Common Student Concussion Scenario

Pennsylvania’s Statewide Return to Learn Concussion Management Team (CMT) Model www.brainsteps.net

1. 2. 3. 4. 5.

Student returns to school to Learn School mayReturn not implement accommodations Symptoms flare Concussion Management Student pushes through Teams (CMTs) can symptoms alleviate these Student waits for medical appointment 2 issues & Continues potentially promote weeks away. pushing through symptoms. faster student recovery 6. At appointment, Dr. may place student on homebound rest for period of time because at this point, symptoms are so severe. www.brainsteps.net

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Return to Learn BrainSTEPS Concussion Management Team (CMT) Model

Concussion Management Team (CMT)

CMT 1. Academic Monitor 2. Symptom Monitor

– CMTs consist of 2 monitors • Academic Monitor (School Psych, Guidance Counselor) Symptom Monitor (School Nurse)

– 700+ Return to School Concussion Teams across the state of PA since Jan. 2013 www.brainsteps.net

Utilizes the Return to Learn Concussion Electronic Toolkit

Academic Monitoring Tool 1 page 1 side Teachers Fill Out Classwork, Homework, Tests, Assignments, Behaviors

Symptom Monitoring Tool 1 page 1 side Student Fills Out Symptom Severity Rating Scale

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Concussion Management Team

CMT Model Provides Pennsylvania School Districts: 1. Structure  Concussion Return to Learn Protocol

2 person CMT does NOT take the place of the

“Interdisciplinary Team”

(Educational, Medical/Rehab, Parent, Student)

The CMT serves as the “Concussion Coordinators” *CMTs are the Data Collectors & Information Gatherers www.brainsteps.net

2. Online Return to Learn Training

 Best Practices for managing concussions in the classroom

3. Tracking student progress

 Concussion Academic & Symptom Monitoring Toolkit

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PA’s Layered Statewide Educational Infrastructure for Concussion Return to Learn

CMT Monitoring Student Concussion

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@ School level 700+ Concussion Management Teams for Return to Learn

BrainSTEPS Support begins 4 weeks post @ Intermediate Unit level 31 Regional Consulting Teams

At 4 weeks post concussion: Students are referred to BrainSTEPS & A Concussion (mTBI) Brain Injury Supports Framework is created

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PA Students who should be referred to your regional Intermediate Unit BrainSTEPS Team Type of Student Acquired Brain Injury

When to Refer a Student to BrainSTEPS

Brain injury occurring anytime AFTER birth

4 weeks post concussion unless student has a history of any of the following then refer sooner: • Prior concussions • Migraines • Learning, attention or emotional disabilities, sleep disorders

New Moderate TBI, Severe TBI, Non-TBI

As soon as injury occurs, the sooner you refer the better. Don’t wait for the student to experience educational impacts/bad grades. Refer early to prevent issues.

Acquired Brain Injuries (TBI or non-TBI) that occurred in the past

If the student is experiencing educational impacts from an earlier brain injury, make a referral.

BrainSTEPS Teams are not CMTs • 29 educational Intermediate Units across Pennsylvania & 2 School Districts • Consultation & Training for all severities of Acquired Brain Injuries

CMTs are not BrainSTEPS Teams • 700+ across Pennsylvania based in school districts • Taught to manage concussions (only) for the initial 4 weeks prior to making a BrainSTEPS referral

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Concussion

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The Centers for Disease Control (CDC) & Prevention document:

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S. Davies, B. Eagan Brown, G. Gioia, A. Glang, K. McAvoy

http://www.cdc.gov/concussion/pdf/TBI_Classr oom_Tips_for_Teachers-a.pdf

Concussion Management Team Registration www.brainsteps.net

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PaTTAN: www.pattan.net Available for download at:

TBI added as an “Educational Initiative” in 2012

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Available to order in bulk at: www.pattan.net

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BrainSTEPS 2014

*Webinars will be archived at www.pattan.net & www.brainsteps.net The BrainSTEPS Program, PA Department of Health & PA Department of Education invite your PA school to form & train a

Return to Learn Concussion Management Team (CMT) Join the 700+ Return to Learn Concussion Management Teams that have formed in PA school districts within the last 1.5 years

Return to Learn Concussion Series Wednesday, September 10, 2014 Medical Management of Concussion 3:30—5:00pm Gerard Gioia, PhD

Wednesday, October 1, 2014 School Impacts, Return to School Progression, Symptom Based Accommodations 3:30—5:00pm Brenda Eagan Brown, MEd, CBIS

Wednesday, November 5, 2014 Vision Issues Impacting Academics 3:30—4:30pm Nathan Steinhafel, M.S., O.D., F.A.A.O

Wednesday, November 12, 2014

Vestibular Issues Impacting Academics 3:30—4:30pm Lenore Herget, PT, DPT, MEd

December 18, 2014

To register:

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Wednesday, October 22, 2014: Legal Dimensions for Schools 3:30—5:00pm Perry Zirkel, PhD, JD, LLM

Supporting Emotional & Mental Health of Students with Protracted Recovery 3:30—5:00pm David Brent, MD

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