TOXMAP - GIS Gateway to Environmental Health Databases

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TOXMAP - GIS Gateway to Environmental Health Databases 2005 ESRI Health User Conference October 25, 2005 http://toxmap.nlm.nih.gov

National Institutes of Health, U.S. Dept. of Health and Human Services

Authors • Colette Hochstein, D.M.D., MLS National Library of Medicine (NLM) TOXMAP Project Officer • Darren Gemoets Aquilent, Inc. Senior Software Engineer

National Library of Medicine Located at the National Institutes of Health in Bethesda, Maryland

Toxicology and Environmental Health Program (TEHIP) …provide core toxicology and environmental health information resources and services

Toxics Release Inventory (TRI)

Iterative Approach

Single chemical, single year

Trends – single chemical

Population Overlay

TOXMAP Architecture • Architecture defined before ArcIMS chosen • ArcIMS best fit • Standard browser • Server designed to run on Windows, Solaris, or Linux • Java & Open Source • Web services for growth

Evaluation: Focus Groups

What is a Focus Group? • A carefully planned discussion • A data collection procedure • With 7 to 12 people and a skilled interviewer • Informal sharing of ideas/perceptions

Benefits of Focus Groups • • • • • •

Quick identification Time efficient, cost effective Comfortable format Builds rapport Enables observation Written transcript

However… • Focus groups assess only what customers say they do • There are often major differences between what people say and what they do • Focus groups should not be used as the only source of usability data • They should not be used to measure interface usability

Uses of Focus Groups • • • • • • • • •

Decision making Product/program development Evaluation of user satisfaction Planning and goal setting Needs assessment Quality improvements Organizational learning Policy making and testing Research tool

When? Before, during, or after …. • Before: Needs Assessment, asset analysis, “climate survey,” planning, and pilot testing • During : Formative evaluation, feedback, monitoring, reporting, process evaluation • After: Summative evaluation, outcome evaluation, feedback

Who? • What type of people would give you the information you want? • Who are the target audiences? • What characteristics should the participants have? • How do you identify information-rich people?

How? • Do it yourself

• Use a professional moderator

Our First Approach Teleconference format: • Two sessions with professional colleagues • Participants reviewed a web-based “TOXMAP Tour” before the sessions • Followed a discussion guide we developed ourselves • Recorded the sessions (ourselves/audio)

Challenges Time • We made all contacts ourselves • We developed all related resources ourselves • We had to practice (we’re not professional moderators)

Expertise • We contacted those we already knew • We asked questions we thought would give us the info we wanted • We got an audio transcript only (not written)

One Year Later… • We had acquired NIH evaluation funds to study TOXMAP • We had experience with professionally moderated web-based focus groups that had been conducted on several of our other resources • We began the process of planning professionally moderated focus groups

Our Objectives



To assess the strengths and weaknesses of the TOXMAP web site



To better understand how respondents navigated TOXMAP



To gauge reactions to potential features of TOXMAP that were presented in mock-up format

Our Participants • Two groups of 9–12 each (professionals and concerned citizens) • Balance of adult men and women • Employed in the environmental, occupational, industrial, and public health and information fields • Actively participate in community or national activities related to environmental health

We Screened Potential Participants

We Used a “Tour”

We Gave Homework!

We Used Mock-Ups

We Had a Professional Moderator • Followed a preplanned script of specific issues and set goals for the type of information to be gathered. • Kept the discussion on track without inhibiting the flow of ideas and comments. • Ensured that all group members contribute to the discussion and must avoid letting one participant's opinions dominate. • Wrote a short report summing up the prevailing mood in the group, illustrated with a few quotes.

We Read the Report

We Studied the Logs

We “Mapped Out” Our Goals

We Determined Our Next Steps….

Multiple chemicals displayed on a single map

Superfund/NPL sites

Occupation Maps

Male Lung Cancer data with… TRI Sites

TRI Chromium Sites

Sample Timeline • Determine your objectives Conduct the Focus Group! • Decide •proposal Draft will discussion give you the guide • Obtainwho from selected information (moderator you want orparticipants client) consultant or• Remind develop your own outlining all topicstool; to be objectives • Web-based and timing • Develop aproposal recruitment • Reviewcovered for:thescreening teleconference, etc. associated withinformation each questionnaire (provides used • Timing • Sessions normally held to select participants) • Cost • Prepare materials to use at 6 & 8pm and last for • Details (location, where the during the session one hour and forty-five • Begin participant recruitment study will occur, recruitment minutes • Select a general moderator and a specifications, topics • Determine what/if incentive can/will be to berecorder covered) • Record the session offered

Informal

Formal

Less expensive More control over selection of participants

More expensive Less control over selection of participants

Smaller potential participant Larger potential participant base base More paperwork Less paperwork (moderator) Formal report depends on YOUR notes

Prompt, professional formal report

May be viewed as less objective by participants (because YOU are conducting)

Often viewed as more objective- the moderator is neutral

Focus Groups Have Helped Direct Our Growth

For More Information … Colette Hochstein [email protected] General Questions [email protected]

http://toxmap.nlm.nih.gov