Background Purpose Leadership Working Group Advocacy Strategy ...
Not Without Us: Mobilizing Communities to Advocate for Women’s Involvement in PrEP Implementation – US Women & PrEP Working Group Dázon Dixon Diallo, MPH – President/CEO, SisterLove Inc.
Key Aims for Women’s PrEP Implementation
Background In March 2012, a group of women’s HIV and health advocates met to determine a collective response to the FDA’s approval of the use of a daily anti-retroviral as primary prevention for HIV negative adults in the US. The US Women & PrEP Working Group continues to amplify a national voice that explores and questions what a new HIV prevention tool such as PrEP could mean for women in the United States.
Purpose • • • •
National community representing women’s voices Inquiry, Advocacy & Accountability Ensure women’s safety, efficacy and accessibility in PrEP research & rollout Educate and engage community in PrEP discourse and information dissemination • Mobilize a diversity of women’s HIV and health advocates, researchers and policy makers in PrEP and other Biomedical Prevention Options for women
• Articulated pathway to get responses to questions posed in USW&PWG Position Statement • Civil Society engagement in process of planning and rolling out PrEP/Biomedical Prevention Options in US • National plan for provider education and social marketing about PrEP • Plan for incorporating PrEP education and access for women into the National HIV/AIDS Strategy • Process including milestones, feedback mechanisms, resources and accountability
Advancing The Advocacy Strategy Face-to-Face
Leadership Convener: Co-Coordinators:
Dazon Dixon Diallo, SisterLove Inc. Manju Chatani-Gada, AVAC Anna Forbes, Consultant
Inaugural Meeting Washington DC
Working Group Advocacy Strategy Shared Vision
Awareness & Education
Policy & Research Mobilization
High Level Mtgs
At the White House with ONAP, DAIDS, CDC, OHAIDP, OAR & USW&PWG
Education
• Webinars • Oral/Poster Presentations • Community Teach-Ins • Focus Groups • Publications
Mobilization
• CROI Community Summit • Sign-On Campaign • Media Exposure
• Create opportunities to develop and deliver educational resources to increase awareness & education of PrEP & Women in US.
• Influence implementation research strategies to address women’s concerns. • Affect PreP policy & resources to include women.
Outcomes • 80+ organizational and individual members of the Working Group • Successful Campaign to secure funding for CDC Implementation Pilot in SRH centers to include women
What’s Next? – • Ongoing communication w/ Federal & Industry Partners • National Webinars on US Women & PrEP & other Biomedical Prevention Options
• Inclusive process that brings together advocates, researchers, HIV+ women, government & industry partners to prioritize women & PrEP implementation.
Women & PrEP Position Statement – CROI 2013
• Working Group Face2Face Meeting – CROI, Seattle, February 2015 • National & Int’l Engagement (USCA, CROI, AIDS2016, NIH Networks, IAPAC, R4P, etc.) • Articles, Workshops, Satellites, Orals & Posters • Ensuring incorporation of PrEP with other Women’s High Impact Prevention Strategies
• Key qualitative PrEP attitude data collection for Transgender, Sex Worker and Drug Using Women • More than 1000 participants in 5 webinars on: PrEP Research in Women; “PrEPception (Safe Conception using PrEP); and Deconstructing Notions of Risk Among Women & Girls • National Repository of Information, Publications and Convenings on Women & PrEP in the US
Acknowledgements • Collaborating Partners: AVAC, The Moriah Fund, HIV Prevention Trials Network, Microbicides Trials Network; The Well Project; National Women’s Health Network; HIV Prevention Justice Alliance; BAPAC; Clinician Consultation Center; and Women’s HIV Research Collaborative • Informal US PrEP Community Education Consortium: Project Inform; AIDS Foundation of Chicago/Project RSP; San Francisco AIDS Foundation; and PrEP REP Project
• Leadership Partners: Dawn Smith (CDC); Keith Rawlings (Gilead Sciences); Kate McQueen (FHI360); Judy Auerbach (UCSF); and Mitchell Warren (AVAC).
Key Aims for Women’s PrEP Implementation
Background In March 2012, a group of women’s HIV and health advocates met to determine a collective response to the FDA’s approval of the use of a daily anti-retroviral as primary prevention for HIV negative adults in the US. The US Women & PrEP Working Group continues to amplify a national voice that explores and questions what a new HIV prevention tool such as PrEP could mean for women in the United States.
Purpose • • • •
National community representing women’s voices Inquiry, Advocacy & Accountability Ensure women’s safety, efficacy and accessibility in PrEP research & rollout Educate and engage community in PrEP discourse and information dissemination • Mobilize a diversity of women’s HIV and health advocates, researchers and policy makers in PrEP and other Biomedical Prevention Options for women
• Articulated pathway to get responses to questions posed in USW&PWG Position Statement • Civil Society engagement in process of planning and rolling out PrEP/Biomedical Prevention Options in US • National plan for provider education and social marketing about PrEP • Plan for incorporating PrEP education and access for women into the National HIV/AIDS Strategy • Process including milestones, feedback mechanisms, resources and accountability
Advancing The Advocacy Strategy Face-to-Face
Leadership Convener: Co-Coordinators:
Dazon Dixon Diallo, SisterLove Inc. Manju Chatani-Gada, AVAC Anna Forbes, Consultant
Inaugural Meeting Washington DC
Working Group Advocacy Strategy Shared Vision
Awareness & Education
Policy & Research Mobilization
High Level Mtgs
At the White House with ONAP, DAIDS, CDC, OHAIDP, OAR & USW&PWG
Education
• Webinars • Oral/Poster Presentations • Community Teach-Ins • Focus Groups • Publications
Mobilization
• CROI Community Summit • Sign-On Campaign • Media Exposure
• Create opportunities to develop and deliver educational resources to increase awareness & education of PrEP & Women in US.
• Influence implementation research strategies to address women’s concerns. • Affect PreP policy & resources to include women.
Outcomes • 80+ organizational and individual members of the Working Group • Successful Campaign to secure funding for CDC Implementation Pilot in SRH centers to include women
What’s Next? – • Ongoing communication w/ Federal & Industry Partners • National Webinars on US Women & PrEP & other Biomedical Prevention Options
• Inclusive process that brings together advocates, researchers, HIV+ women, government & industry partners to prioritize women & PrEP implementation.
Women & PrEP Position Statement – CROI 2013
• Working Group Face2Face Meeting – CROI, Seattle, February 2015 • National & Int’l Engagement (USCA, CROI, AIDS2016, NIH Networks, IAPAC, R4P, etc.) • Articles, Workshops, Satellites, Orals & Posters • Ensuring incorporation of PrEP with other Women’s High Impact Prevention Strategies
• Key qualitative PrEP attitude data collection for Transgender, Sex Worker and Drug Using Women • More than 1000 participants in 5 webinars on: PrEP Research in Women; “PrEPception (Safe Conception using PrEP); and Deconstructing Notions of Risk Among Women & Girls • National Repository of Information, Publications and Convenings on Women & PrEP in the US
Acknowledgements • Collaborating Partners: AVAC, The Moriah Fund, HIV Prevention Trials Network, Microbicides Trials Network; The Well Project; National Women’s Health Network; HIV Prevention Justice Alliance; BAPAC; Clinician Consultation Center; and Women’s HIV Research Collaborative • Informal US PrEP Community Education Consortium: Project Inform; AIDS Foundation of Chicago/Project RSP; San Francisco AIDS Foundation; and PrEP REP Project
• Leadership Partners: Dawn Smith (CDC); Keith Rawlings (Gilead Sciences); Kate McQueen (FHI360); Judy Auerbach (UCSF); and Mitchell Warren (AVAC).
