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Notes From the Road Cinda Johnson, Ed.D. Seattle University
And I put my head down and I wept…..
And then there’s a detour
Detour The definition of a detour is a route that is different from the ordinary, often used when the direct route cannot be used. An example of a detour is a side road that drivers must go down when the main road is closed.
Roadblock • any condition that makes it difficult to make progress or to achieve an objective • a difficulty or obstacle to progress
Ally Ally comes from the Latin word alligare, meaning "to bind to," like nations who are allies in wartime — they will act together, and protect one another. You can also use ally as a verb, meaning "join forces with."
Guide to assist (a person) to travel through, or reach a destination in, an unfamiliar area, as by accompanying or giving directions to the person
Advocate • one that pleads the cause of another
• one that defends or maintains a cause or proposal • one that supports or promotes the interests of another
Things to consider: • Grief, loss and the dream child
• Safety concerns and over-protectiveness • Attitudes of others • Friendships • Discounting child’s abilities • Transitions
What I’ve learned: • No one brings casseroles for long term chronic illness, high need disabilities or mental illness • Siblings are impacted in school, home and the community
• It doesn’t “go away” • It can consume your life
• It can cause physical, emotional and social strain on a family
What I’ve learned Part 2: A chance for the most honest, loving family; one that is closer than could ever be imagined.
A chance to make a small difference in the lives of others. A chance to take a personal experience and use it to grow professionally.
What we can do: • Listen (don’t try to fix it)
• Be careful with advice • Be there (don’t try to fix it) • Offer to do even small things that may be overwhelming • Accompany to meetings that may be stressful • Mentor, not lecture
Thoughts for Teachers • Don’t turn away • Notice every student every day • Gather information on health, education, social needs • Communicate with families • Advocate for student with administrators, others • Develop robust transition plans and provide services.
Thoughts for Teachers • Recognize when a student is in trouble
• Comprehensive assessment • Assure treatment • Positive interpersonal connections • Quality education experiences • Positive classroom environment
Resources • Open Doors for Multicultural Families
• Parent to Parent (P2P) Programs • Washington Autism Alliance & Advocacy • Washington State Resources for Families • Disability Rights Washington
State Needs Projects • Center for Change in Transition Services (CCTS) • eLearning for Educators • Special Education Support Center • Special Education Technology Center (SETC) • Washington Sensory Disability Services (WSDS)
What can you do? Will you be an ally, a guide and/or an advocate?
Will you make a difference?
Contact Information:
Cinda Johnson, Ed.D.
[email protected] 206-296-5888 www.lineacinda.com
Contact Information:
Sue Ann Bube, Ed.D.
[email protected] 206-296-2245