Embracing Youth Empowerment Participants
5/4/2013
Embracing Youth Empowerment Gordon R. Hodas MD Jake Vandall Alex Knapp PAPBS Implementer’s Forum May 30, 2013 Hershey Lodge and Convention Center
Participants • Gordon R. Hodas, MD • Jake Vandall • Alex Knapp
1
5/4/2013
Gordon R. Hodas MD
• Statewide Child Psychiatric Consultant, PA Office of Mental Health and Substance Abuse Services (OMHSAS) since 1992 • Child Psychiatric Consultant, Bucks County Behavioral Health System since 2005 • Member, AACAP Systems of Care Committee • No conflicts of interest.
3
Jake Vandall • Certified Peer Specialist, Family Services of Western Pennsylvania • Member, AACAP Systems of Care Committee’s Youth Coalition • Young adult member of Pennsylvania Youth and Family Training Institute (for statewide High Fidelity Wraparound implementation) • No conflicts of interest
2
5/4/2013
Alex Knapp • Lead Youth Involvement Specialist, PA System of Care Partnership • No conflicts of interest
Workshop Goals Our Goals For Today • Consider antecedents of youth empowerment, beginning with the family empowerment movement of 1980’s, moving forward. • Clarify what youth empowerment entails and why it is important. • Hear the stories of two young adults regarding their experiences within the education system as students – strengths and limitations. • Consider the interface of youth and education, in terms of the model of positive behavior supports and the role of students within the educational system.
3
5/4/2013
The Context
Historical overview
CASSP Principles Child and Adolescent Service System Program (CASSP) Principles • 1982: Role of Jane Knitzer, Unclaimed Children: – A call to conscience and to action – Needs of children with complex needs not addressed – Systems fragmented, families marginalized
• 1984: National initiative at federal level (NIMH), to address needs of children in public system & families. • 1984: First NIMH seed grants to states for kids MH. • 1986: CASSP Principles first articulated nationally.
8
4
5/4/2013
CASSP Principles PA’s Six CASSP Principles (1995) • Child-centered • Family-focused • Community-based • Multi-system • Culturally competent • Least restrictive/least intrusive
Systems of Care Further Challenges and Developments • Traditional Rx not work for youth with complex needs. • Families still often marginalized, even blamed. • Emergence of unique, non-traditional, individualized approaches – Kaleidoscope (Chicago), Alaska Youth Initiative, system of care approach in Vermont. • CASSP Principles helpful but limited, needed “teeth.” • “Systems of care” concept embraced by communities, often with use of Wraparound, as tool for system reform, for youth with multi-system involvement and significant challenges, and to empower families.
10
5
5/4/2013
Systems of Care 7 Values/Principles for System of Care (Pires, 2011, from Stroul and Friedman, 1986) • Family-driven and youth-guided. • Home and community-based. • Strengths-based and individualized. • Culturally and linguistically competent. • Integrated across systems. • Connected to natural helping networks. • Data-driven and outcomes-oriented.
11
Systems of Care System of Care is Value-Based (Stroul, 2005, Georgetown University) • System of care is, first and foremost, a set of values and principles that provides an organizing framework for systems reform on behalf of children, youth, and families (my underlining).
12
6
5/4/2013
Family Movement Development of Family Movement -- 1980’s forward • Built on momentum of Knitzer’s book & NIMH grants. • PA an early adapter, grass-roots family advocacy. • Many factors contributed to family movement: – – – – –
Being blamed. Being overlooked. Being disqualified. Having experience and expertise ignored. Sometimes, needing to give up child custody to get MH Rx.
• Formation of National Federation of Families,1989. Now over 120 chapters/state organizations.
Family Empowerment
Family empowerment
7
5/4/2013
Family Empowerment Definition of “Family-Driven Care” • Family-driven care “means families have a primary decision-making role in the care of their own children as well as the polices and procedures governing care of all children in their community, state, tribe, territory, and nation “ (Osher, Osher, Blau). • Note progression from “family-centered” to “familydriven.”
Family Empowerment Provider Concerns • “Our training and expertise will be irrelevant.” • “The need for political correctness will take over.” • “We’ll be bullied by families.” • “What’s the point of going to graduate/medical school?” • “If families know so much, how come they need Rx?” • “Should we just agree with what they want and remain silent?”
8
5/4/2013
Family Empowerment What Smart Professionals Learned • Collaboration is invigorating, and synergizes & amplifies possibilities of change. • Family’s “lived experience” = unique expertise. • Drawing upon this expertise improves Rx and Rx planning, does not undermine the professional. • Active families are more engaged & more resilient. • Meaningful conversation & disagreements possible. • Professionals still have important roles – providing expertise and promoting dialogue/consensus.
Youth Empowerment
Youth empowerment
9
5/4/2013
Youth Empowerment Parallels and Differences with Family Movement • Youth movement made possible by, and builds on, the family movement. • Based on commitment to collaboration, shared decision-making, value of youth’s “lived experience.” • Determinants of youth movement: – – – –
Desire for own voice, separate from parents. View of needs may differ from parent. Parent-child conflict possible. Youth tired of being overlooked, disqualified, even blamed.
Youth Empowerment National Leadership and Youth Empowerment • Formation of YouthMOVE National. – Role of Gary Blau, Child and Family Branch, Center for Mental Health Services (CMHS) in SAMSA. – YouthMOVE National now part of Federation of Families.
• State & county chapters. • Meaning of YouthMOVE title = “Youth Motivating Others through Voices of Experience”
10
5/4/2013
Youth Empowerment Definition of “Youth-Guided Care” • Youth guided means “to value youth as experts, respect their voice, and to treat them as equal partners in creating system change at the individual, state, and national level” (YouthMOVE National).
Youth Empowerment Youth Empowerment in Pennsylvania • Grass-roots organizations, over the years. • Youth Subcommittee, OMHSAS Planning Council. • YouthMOVE Chapters, Philadelphia and Allegheny. • PA’s Youth and Family Training Institute (YFTI), with unique composition & youth on Advisory Board. • PA’s System of Care Partnership, with youth recruitment, engagement, and leadership structure.
11
5/4/2013
Youth Empowerment What Smart Professionals Are Learning • Collaboration is invigorating, and synergizes & amplifies possibilities of change. • Youth’s “lived experience” = unique expertise. • Drawing upon this expertise improves Rx and Rx planning, does not undermine the professional. • Active youth are more engaged & more resilient. • Meaningful conversation & disagreements possible. • Professionals still have important roles – providing expertise and promoting dialogue/consensus.
Youth and Public Education
Youth and public education
12
5/4/2013
Parallels to Public Education SOC Concept Now Encompasses a Public Health Approach (Pires, 2010) • Systems of care have moved closer to a public health framework, focusing not only on treatment for individual children with serious conditions but also encompassing promotion, prevention, early intervention, and education to improve outcomes and health developmental and behavioral health status for identified populations of children.
Youth and Public Education PA’s Positive Behavior Supports (PAPBS) Approach • A reform effort in public education. • A model created to address issues of prevention, early intervention, and higher level need, both behavioral and educational. • Three-tiered levels of prevention, public health view. • Effort to promote, and reinforce, positive behavior. • Effort to engage entire community – school & home. • Appropriate focus on involving parents/families.
13
5/4/2013
Youth and Public Education Some Questions to Consider • One identified PABPS goal: Ensure that youth and families will have opportunities for meaningful participation in all PAPBS Network activities, including the development, provision, and monitoring of services, policies, and procedures
• How much youth participation actually occurs, at both the school and network levels? How much shared decision-making with youth? • Would PAPBS have prevented, or addressed, some of the experiences our young adults will describe?
REFERENCES CASSP AND System of Care Principles • Hernandez, M & Isaacs. M (1998): Promoting cultural competence in children’s mental health services. Baltimore: Brookes. • Pumariega, A & Winters, N (ed) (2003): Handbook of child and adolescent systems of care: The new community psychiatry. San Francisco: Jossey-Bass. • Stroul, B (ed) (1996): Children’s mental health: creating systems of care in a changing society. Baltimore: Brookes.
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Embracing Youth Empowerment Gordon R. Hodas MD Jake Vandall Alex Knapp PAPBS Implementer’s Forum May 30, 2013 Hershey Lodge and Convention Center
Participants • Gordon R. Hodas, MD • Jake Vandall • Alex Knapp
1
5/4/2013
Gordon R. Hodas MD
• Statewide Child Psychiatric Consultant, PA Office of Mental Health and Substance Abuse Services (OMHSAS) since 1992 • Child Psychiatric Consultant, Bucks County Behavioral Health System since 2005 • Member, AACAP Systems of Care Committee • No conflicts of interest.
3
Jake Vandall • Certified Peer Specialist, Family Services of Western Pennsylvania • Member, AACAP Systems of Care Committee’s Youth Coalition • Young adult member of Pennsylvania Youth and Family Training Institute (for statewide High Fidelity Wraparound implementation) • No conflicts of interest
2
5/4/2013
Alex Knapp • Lead Youth Involvement Specialist, PA System of Care Partnership • No conflicts of interest
Workshop Goals Our Goals For Today • Consider antecedents of youth empowerment, beginning with the family empowerment movement of 1980’s, moving forward. • Clarify what youth empowerment entails and why it is important. • Hear the stories of two young adults regarding their experiences within the education system as students – strengths and limitations. • Consider the interface of youth and education, in terms of the model of positive behavior supports and the role of students within the educational system.
3
5/4/2013
The Context
Historical overview
CASSP Principles Child and Adolescent Service System Program (CASSP) Principles • 1982: Role of Jane Knitzer, Unclaimed Children: – A call to conscience and to action – Needs of children with complex needs not addressed – Systems fragmented, families marginalized
• 1984: National initiative at federal level (NIMH), to address needs of children in public system & families. • 1984: First NIMH seed grants to states for kids MH. • 1986: CASSP Principles first articulated nationally.
8
4
5/4/2013
CASSP Principles PA’s Six CASSP Principles (1995) • Child-centered • Family-focused • Community-based • Multi-system • Culturally competent • Least restrictive/least intrusive
Systems of Care Further Challenges and Developments • Traditional Rx not work for youth with complex needs. • Families still often marginalized, even blamed. • Emergence of unique, non-traditional, individualized approaches – Kaleidoscope (Chicago), Alaska Youth Initiative, system of care approach in Vermont. • CASSP Principles helpful but limited, needed “teeth.” • “Systems of care” concept embraced by communities, often with use of Wraparound, as tool for system reform, for youth with multi-system involvement and significant challenges, and to empower families.
10
5
5/4/2013
Systems of Care 7 Values/Principles for System of Care (Pires, 2011, from Stroul and Friedman, 1986) • Family-driven and youth-guided. • Home and community-based. • Strengths-based and individualized. • Culturally and linguistically competent. • Integrated across systems. • Connected to natural helping networks. • Data-driven and outcomes-oriented.
11
Systems of Care System of Care is Value-Based (Stroul, 2005, Georgetown University) • System of care is, first and foremost, a set of values and principles that provides an organizing framework for systems reform on behalf of children, youth, and families (my underlining).
12
6
5/4/2013
Family Movement Development of Family Movement -- 1980’s forward • Built on momentum of Knitzer’s book & NIMH grants. • PA an early adapter, grass-roots family advocacy. • Many factors contributed to family movement: – – – – –
Being blamed. Being overlooked. Being disqualified. Having experience and expertise ignored. Sometimes, needing to give up child custody to get MH Rx.
• Formation of National Federation of Families,1989. Now over 120 chapters/state organizations.
Family Empowerment
Family empowerment
7
5/4/2013
Family Empowerment Definition of “Family-Driven Care” • Family-driven care “means families have a primary decision-making role in the care of their own children as well as the polices and procedures governing care of all children in their community, state, tribe, territory, and nation “ (Osher, Osher, Blau). • Note progression from “family-centered” to “familydriven.”
Family Empowerment Provider Concerns • “Our training and expertise will be irrelevant.” • “The need for political correctness will take over.” • “We’ll be bullied by families.” • “What’s the point of going to graduate/medical school?” • “If families know so much, how come they need Rx?” • “Should we just agree with what they want and remain silent?”
8
5/4/2013
Family Empowerment What Smart Professionals Learned • Collaboration is invigorating, and synergizes & amplifies possibilities of change. • Family’s “lived experience” = unique expertise. • Drawing upon this expertise improves Rx and Rx planning, does not undermine the professional. • Active families are more engaged & more resilient. • Meaningful conversation & disagreements possible. • Professionals still have important roles – providing expertise and promoting dialogue/consensus.
Youth Empowerment
Youth empowerment
9
5/4/2013
Youth Empowerment Parallels and Differences with Family Movement • Youth movement made possible by, and builds on, the family movement. • Based on commitment to collaboration, shared decision-making, value of youth’s “lived experience.” • Determinants of youth movement: – – – –
Desire for own voice, separate from parents. View of needs may differ from parent. Parent-child conflict possible. Youth tired of being overlooked, disqualified, even blamed.
Youth Empowerment National Leadership and Youth Empowerment • Formation of YouthMOVE National. – Role of Gary Blau, Child and Family Branch, Center for Mental Health Services (CMHS) in SAMSA. – YouthMOVE National now part of Federation of Families.
• State & county chapters. • Meaning of YouthMOVE title = “Youth Motivating Others through Voices of Experience”
10
5/4/2013
Youth Empowerment Definition of “Youth-Guided Care” • Youth guided means “to value youth as experts, respect their voice, and to treat them as equal partners in creating system change at the individual, state, and national level” (YouthMOVE National).
Youth Empowerment Youth Empowerment in Pennsylvania • Grass-roots organizations, over the years. • Youth Subcommittee, OMHSAS Planning Council. • YouthMOVE Chapters, Philadelphia and Allegheny. • PA’s Youth and Family Training Institute (YFTI), with unique composition & youth on Advisory Board. • PA’s System of Care Partnership, with youth recruitment, engagement, and leadership structure.
11
5/4/2013
Youth Empowerment What Smart Professionals Are Learning • Collaboration is invigorating, and synergizes & amplifies possibilities of change. • Youth’s “lived experience” = unique expertise. • Drawing upon this expertise improves Rx and Rx planning, does not undermine the professional. • Active youth are more engaged & more resilient. • Meaningful conversation & disagreements possible. • Professionals still have important roles – providing expertise and promoting dialogue/consensus.
Youth and Public Education
Youth and public education
12
5/4/2013
Parallels to Public Education SOC Concept Now Encompasses a Public Health Approach (Pires, 2010) • Systems of care have moved closer to a public health framework, focusing not only on treatment for individual children with serious conditions but also encompassing promotion, prevention, early intervention, and education to improve outcomes and health developmental and behavioral health status for identified populations of children.
Youth and Public Education PA’s Positive Behavior Supports (PAPBS) Approach • A reform effort in public education. • A model created to address issues of prevention, early intervention, and higher level need, both behavioral and educational. • Three-tiered levels of prevention, public health view. • Effort to promote, and reinforce, positive behavior. • Effort to engage entire community – school & home. • Appropriate focus on involving parents/families.
13
5/4/2013
Youth and Public Education Some Questions to Consider • One identified PABPS goal: Ensure that youth and families will have opportunities for meaningful participation in all PAPBS Network activities, including the development, provision, and monitoring of services, policies, and procedures
• How much youth participation actually occurs, at both the school and network levels? How much shared decision-making with youth? • Would PAPBS have prevented, or addressed, some of the experiences our young adults will describe?
REFERENCES CASSP AND System of Care Principles • Hernandez, M & Isaacs. M (1998): Promoting cultural competence in children’s mental health services. Baltimore: Brookes. • Pumariega, A & Winters, N (ed) (2003): Handbook of child and adolescent systems of care: The new community psychiatry. San Francisco: Jossey-Bass. • Stroul, B (ed) (1996): Children’s mental health: creating systems of care in a changing society. Baltimore: Brookes.
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